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Embracing Autism – A mother And Son's Journey is a recount of a mother and son's story from the first indication and the ensuing recognition that something.
Table of contents
- As a parent of two kids with autism, I've learned how much attitudes have changed
- Refrigerator mother theory - Wikipedia
- Refrigerator mother theory
- 1960s: a period for change
From job opportunities to housing to social interactions, there are many aspects to worry about. Elaine Hall and Sue Patton know this all too well. Elaine lives in Los Angeles, California. She adopted her son Neal from an orphanage in Russia when he was 23 months old. Sue lives in a small town in Indiana called Pendleton. Her son Blair is 25 years old and also has autism. Sue Patton Indiana : He was diagnosed when he was in kindergarten when he was about 6.
We had some issues with him not knowing how to interact with other kids. One of the things that got it all brought to a head was because he wanted to kiss this little girl in kindergarten, and of course her mom threw a fit and wanted to sue the school. Go and get him some Ritalin and everything will be good. Elaine Hall California : When we adopted Neal, we were told that there may be some catching up that he needed to do, from being in an orphanage for the first two years of his life. He was shortly after diagnosed with autism. He was my son. Friends said that I should send him back to Russia, therapists looked at me with sadness and pain.
All the way through school and into adulthood, it was always a struggle with social skills, just not quite understanding situations, having trouble if he got off schedule. So we had to get that under control, just to help him feel OK. Somebody comes to the house and works with him.
As a parent of two kids with autism, I've learned how much attitudes have changed
He will talk very rapidly, so she works on his rate of speech. They talk about music videos, and other age-appropriate things to help him learn how to talk to other people.
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That helps with some of his motor skills and patience and trying to work through things. My boss has been very accepting. Now he gets therapies paid for through his Medicaid waiver. They do a lot of outings and work on social skills and things like that. After the adoption, I still maintained a practice of using movement and creativity with children and young adults. Even prior to his diagnosis, I always used creativity to connect with him. After his diagnosis, I just started to use everything I knew in theater to connect with him.
I basically joined his autistic world. If he would stare at his hand, I would look at how marvelous the hand was. Traditional therapists in Los Angeles thought I was crazy, because I was enabling his autism.
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Fortunately, I found experts in autism that were emerging, Dr. Stanley Greenspan and Dr.
Barry Prizant, on the East Coast. I started learning from them. He had developed a whole relationship-based approach to autism, that was counter to the popular behavioral approach that was happening, and he encouraged me to keep doing what I was doing but with more of a knowledge base about autism. My methods became the foundation of a program I developed called the Miracle Project, which uses theater and film to bring out the best in individuals with autism and all abilities.
This program is now being sought all over the world. The program emphasizes being in the moment, just as my son and my friends with autism are. So that inclusion starts within ourselves. I never, ever use the words high-functioning and low-functioning. We just need different supports and different environments.
Refrigerator mother theory - Wikipedia
For example, I would be called high-functioning in a creative endeavor, and low-functioning in technology. Another important component to it is understanding sensory needs. I invite the coaches and train the coaches to be in tune to their own sensory system. We realize that the world really is too loud, chaotic. So-called normal people try to make sense of it. Where, my son and friends with autism, they recoil from it.
This was the part that made a lot of professionals at the time think that I was crazy, because if he needed to stack cars one on top of another, I would have a coach sit right next to him and stack cars one on top of another, without judgment. Gradually over time, relationship became important, and they would start naturally playing cars together and building together and sharing together from an organic, natural place.
He also had sensory integration therapy as a child, he had speech therapy, he had communication, which is assisted technology. Then the aspect of relationship-based intervention, which is really tuning in and joining his world. We did use pharmaceuticals for about two to three years until Physical activity is so important. Walking, swimming, moving, dance. We do a lot of dance, a lot of movement. There were organizations about curing, curing, everything was about the cure. Once I was able to cure myself of that need, I could embrace autism, and I love autism.
Sue Indiana : Blair attended public school.
Refrigerator mother theory
He was integrated and mainstreamed until about his freshman year in high school, but he always had a full-time aide with him. So he did about in high school. Elaine California : We homeschooled him. When it came time to ask what is he going to do when he grows up, we thought he was going to be a beekeeper. Neal can pick up a bee, bring it to his nose, and then let it fly away without it ever stinging him. So we did a whole curriculum around bees. You can really teach everything around bees. We learned all about bees. We took him to a bee farm, where we found that what he loved more than the bee was the flowers.
He loves working in the garden. Sue Indiana : Even though he has problems with social skills, he is so outgoing. He has several things that he does right now, but each of them are just three hours a week. He works with our local library. They have a traveling food pantry that goes out with library books once a week, and so his job is to stock the food pantry, and he loves it because he likes working with everybody at the library.
He likes to be involved.
Elaine California : He wakes up every morning on his own, without an alarm, at He still needs support with some things. He can dress himself, but he needs suggestions on making sure he brushes his teeth and brushes his hair and takes a shower and all of that. California has regional centers that receive state money and then certain programs are vendored by the regional centers. His day program is fully funded. Two days a week, he goes to work at Shemesh Organic Farm in Malibu.
He was the first person with a disability that they brought on and hired. At first, he just went through a summer camp, Camp JCA Shalom, but they hired Neal to work in the garden year round, because he loves to work. The experience inspired her to cofound the Lovewins Autism Centre in Nairobi in The centre has 16 pupils currently. Many children with ASD grow up to excel in careers based in visual skills, music, math and art.
Mundia says that autistic children are unique and that parents need to embrace their uniqueness. Research shows that early diagnosis of and interventions for autism are more likely to have major long-term positive effects on symptoms and later skills.
1960s: a period for change
The disorder can sometimes be diagnosed in children before they are 2 years old. Some children with ASD whose development seem normal up to that point begin to regress at or just before that age. Kuffour says of her daughter. There is the Son-Rise home-based program for children with ASD and other developmental disabilities, and applied behaviour analysis, a therapy that focuses on improvement in specific areas, such as communication, social skills and academics.