Dementia Caregivers Share Their Stories: A Support Group in a Book

Dementia Caregivers Share Their Stories: A Support Group in a Book by Lynda A . Markut () [Lynda A. Markut; Anatole Crane;] on leondumoulin.nl
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A Support Group in a Book 4. Replete with the powerful words of experienced caregivers, Dementia Caregivers Share Their Stories is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia. In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income le Replete with the powerful words of experienced caregivers, Dementia Caregivers Share Their Stories is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia.

Inside the Dementia Epidemic - Books about Caregivers' Needs

In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages. Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are: Becoming a caregiver, whether for a spouse or parent Dealing with the personality changes caused by dementia, from anxiety and paranoia to hallucinations and impulsive behavior Keeping dementia sufferers meaningfully involved in life Handling the emotions and stresses of caregiving Seeking help through support groups and other sources, including medical professionals, clergy, and other family members The authors, who have both been caregivers themselves, augment their interviewees' stories with connective commentary and their own personal stories.

A useful resource section is included to refer readers to associations and help-lines. Paperback , pages. To see what your friends thought of this book, please sign up.

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Lists with This Book. This book is not yet featured on Listopia. Jul 31, Abeer Hoque rated it it was amazing Shelves: This is a fantastic book. It is a collection of anecdotes by caregivers, sometimes spouses, sometimes children, of people suffering from dementia of various causes: It's organised chronologically by the various stages of dementia, from early memory loss and confusion, through behavioural changes, physical and emotional support systems, in-home and nursing home care, to death and grieving.

Between each of the anecdotes, which are plainly and heartbreakingly told, the editors summarise, analyse, and support.

Book Dementia Caregivers Share Their Stories: A Support Group In A Book

Their motto is repeated throughout - get help early and often. For example, male caregivers are less likely to seek help unless it's somehow tied to education and information gathering. They also find it harder to express themselves or break down, and both are essential components of getting through the tragedy of watching someone you love "die" while still living.

Dementia Caregiver Support Groups

Other oft repeated advice: One of the caregivers said she'd remind herself every time she'd drive to the nursing home to see her husband, that today was going to be the best day she would have with him. Of the caregivers involved in the study, 22 percent said their health had gotten worse as a result of caregiving, and two in five said they found caregiving to be emotionally stressful.

June 24, 2007

At Family Alliance, Levinson sees those statistics play out in the surveys they distribute to find out the concerns of new support group members. Invariably, she said, self-care and stress management are the first two concerns participants rank.


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Around that time, Markut said she realized that caregiving for a spouse came with different emotional complications than caregiving for a parent. She started a group for caregiving spouses, including Young, which was supposed to last six weeks.

Dementia Caregivers Share Their Stories: A Support Group in a Book

Anatole Crane of Barrington Hills also was part of that original caregiver support group. He said he draws on his own experiences heavily while leading caregiver groups now. Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease.

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