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Feb 14, - A passage in Philip Roth's novel Nemesis describes the horror of catching polio in the US town of Newark in , when outbreaks of the.
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As many as 60 percent, by some estimates, will experience a post-polio aftershock, moving into an old age that few had prepared for. Some polios, as survivors call themselves, say that post-polio has refocused their minds on how the virus shaped their lives — and sharpened their bittersweet memories. Hall, 63, said the effects of post-polio, particularly a deterioration of the breathing muscles, which forced her to take an early retirement and requires her to be on oxygen most of the time, have deepened her understanding of the mantra her parents taught her growing up: that she could choose any road she wanted in life, but that her journey would be different because of the disease.

In an interview over her kitchen table, Ms. Hall held up a photograph, taken when she was 5 and recovering from bone surgery, encased in a white plaster body cast from neck to toe, legs stiffened and splayed by a rod between her ankles.


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In the picture, her older brother, John, in a chest-cast himself from a polio operation he died of respiratory complications at age 52 holds her up from behind. Huge grins illuminate their faces.

After Effects of Polio Can Harm Survivors 40 Years Later | March of Dimes

Hall said, describing her nine months in the cast. A love of art took root as she stood, otherwise immobilized but free to let her imagination roam. Today, water-color landscapes painted in retirement line the walls of her home. Part of the problem for aging polio survivors is that, like World War II veterans or Holocaust survivors, their numbers are shrinking every year, which means that money for scientific research into post-polio is drying up, too. Doctors with hands-on polio experience, like Jacquelin Perry — 91 and still practicing at a rehabilitation center in California — are disappearing even faster.

The History of Polio in the U.S.

Perry began working with polio during World War II, when she was a physical therapist for the Army, and she has seen some patients continually for 50 years or more, creating lifelong charts of their progress, and in many cases, she said, their decline. Her conclusion about polio and age is that the people who worked hardest to overcome disability have in many cases been hit hardest by its second-wave attack, as over-used muscles and nerves gave out after decades of strain. Her observation is backed up by numerous studies.

Perry said in a telephone interview.

The Anti-Vaccine Movement Is Forgetting the Polio Epidemic

Overcoming polio, they say, required immense work, if not obsession, to adapt undamaged muscles and nerves to carry the load. Hanson, for example, the retired banker, said his left knee, unaffected by polio but burdened for years from carrying most of his body weight, gave out about 11 years ago and had to be replaced. The polio-damaged right leg, meanwhile, became even weaker. Get print book.


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    As a five-year-old, Shelley Fraser is known for mischief. Selected pages Title Page. Contents Section 1. Section Section 9. Bibliographic information. Section 1. Section 2. Section 3. Section 4. Section 5.