Manual Multiple Sclerosis…Why Not Me?

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Upon being formally diagnosed with MS in the summer of , I immediately began interferon treatment. For approximately two years after being diagnosed.
Table of contents

But I also go there whenever I have a disabling relapse for instance, when I find it very hard to stand, never mind to walk a few steps, which I have to do to get around the house. It is then that I need steroids — three days of intravenous drips. That happens about once a year — sometimes more, sometimes less. One of the great things about the human race is that we have evolved to be very adaptable. It is remarkable how quickly we can adapt to, and accept, what we know we cannot change. I have adapted to my limitations — and I adapt to them as they change.

‘A silent disaster unfolding’: my life with multiple sclerosis

Our house has three levels of stairs. It has become very difficult to go up them, so I have to work out how to minimise the number of times that I do. I have to call on my wife or one of my children to get me something I need if it is not in the room where I am sitting. So life is considerably more difficult if they are all away. I can still drive a car that has been adapted. My upper body strength is undiminished; in fact, my arms are stronger now because I use them so much more.

My legs are very feeble, however.


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And neither, it seems, does anyone else. The consultants I see at the Hospital for Neurology, one of the greatest centres in the world for the study of MS, have always been reluctant to make predictions. On the other hand, you may get much worse. No one knows. The only way I have found to deal with that has been to try to forget about it.

A View From Why Not?

The neurologist who diagnosed me was right: getting on with my life was the best way to proceed. Denial turns out to be a reasonably effective means of doing so. One of the other good pieces of advice I have received is to ignore advice. It is surprising how many people turn out to know what needs to be done to cure MS or to ameliorate its symptoms: I have been told that I must give up meat, stop eating cheese and milk, never touch alcohol, undergo special forms of therapy involving barometric oxygen, bee stings, hypnotism, acupunture, ayurvedic medicine, even prayer.

One woman recently came up to me in the local park and asked if she could pray for me.

Multiple Sclerosis: Should I Start Taking Medicines for MS?

I said sure. She asked me if I was Catholic, because she was Catholic. No wonder you are in a wheelchair! What the hell do you expect? At present, all of the so-called cures involve considerable discomfort, and do not have any beneficial effects. But there is a great deal of serious research work going on, and it is reasonable to hope that in the next five or 10 years, something will be found that arrests — or even cures — MS.

Janet Street-Porter. Chuka Ummuna. John Rentoul. Matthew Norman.

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